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International Collaborative Gaucher Group (ICGG) Gaucher Disease Registry & Pregnancy Sub-registry

NCT00358943 on ClinicalTrials.gov

Study listings come from ClinicalTrials.gov, where sponsors register and update their own studies. A listing does not mean a study is safe or effective, and DatenUS does not recommend any study. Talk with your doctor before joining a clinical trial, and use ClinicalTrials.gov for contact details and full eligibility rules.

Status
Recruiting
Phase
Observational
Planned enrollment
12,000
Participants, all sites
U.S. sites
86
In 35 states

Study details

Conditions
Gaucher Disease, Cerebroside Lipidosis Syndrome, Glucocerebrosidase Deficiency Disease, Glucosylceramide Beta-Glucosidase Deficiency Disease
Sponsor
Genzyme, a Sanofi Company (Industry)
Sex
All
Healthy volunteers
Not accepted
Start
04/01/1991
Primary completion (expected)
01/31/2034
Last updated by sponsor
10/14/2026

Full eligibility rules, contacts and site names: NCT00358943 on ClinicalTrials.gov

Where the study has sites

Cities with at least one listed U.S. site. Some sites may not be enrolling yet.

  • Arizona: Phoenix, Tucson
  • Arkansas: Little Rock (2)
  • California: Los Angeles (2), Orange (2), Sacramento (2), Beverly Hills, San Diego, San Francisco, Stanford
  • Colorado: Aurora
  • Connecticut: New Haven
  • District of Columbia: Washington D.C. (2)
  • Florida: Jacksonville (2), Tampa (2), Coral Gables, Coral Springs
  • Georgia: Decatur
  • Illinois: Chicago (3)
  • Indiana: Indianapolis
  • Iowa: Iowa City
  • Kentucky: Louisville
  • Louisiana: New Orleans
  • Maine: Portland
  • Maryland: Baltimore
  • Massachusetts: Boston (2)
  • Michigan: Grand Rapids (2), Ann Arbor, Detroit
  • Minnesota: Minneapolis (3)
  • Missouri: Columbia, Kansas City, St Louis
  • Nebraska: Omaha
  • Nevada: Las Vegas
  • New Jersey: Camden, Hackensack, Morristown, New Brunswick, Paterson
  • New York: New York (3), Huntington, New Hyde Park, Rochester, Syracuse, Valhalla
  • North Carolina: Charlotte, Durham
  • Ohio: Cleveland (2), Cincinnati, Columbus, Dublin
  • Oregon: Portland
  • Pennsylvania: Philadelphia (2), Hershey, Pittsburgh
  • Rhode Island: Providence
  • South Carolina: Greenville
  • Tennessee: Nashville
  • Texas: Dallas, Fort Worth
  • Utah: Salt Lake City
  • Virginia: Charlottesville, Fairfax, Norfolk
  • Washington: Seattle (2), Tacoma
  • Wisconsin: Milwaukee

Frequently asked questions

What does recruiting mean?
Recruiting means the study is currently enrolling participants. Not yet recruiting means it has been registered but has not started enrolling. Enrolling by invitation means participants are selected by the study team rather than through open enrollment.
How do I join a clinical trial?
Read the full eligibility criteria and contact information on ClinicalTrials.gov, then talk with your doctor about whether a study may be right for you. The study team decides who can enroll.

Source: ClinicalTrials.gov, National Library of Medicine · Last updated 10/14/2026