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Observation Study in Patients Age 0-5 Years With LAMA2-related Congenital Muscular Dystrophy

NCT06503367 on ClinicalTrials.gov

Study listings come from ClinicalTrials.gov, where sponsors register and update their own studies. A listing does not mean a study is safe or effective, and DatenUS does not recommend any study. Talk with your doctor before joining a clinical trial, and use ClinicalTrials.gov for contact details and full eligibility rules.

Status
Recruiting
Phase
Observational
Planned enrollment
44
Participants, all sites
U.S. sites
14
In 12 states

Study details

Conditions
LAMA2-MD \(Merosin Deficient Congenital Muscular Dystrophy, MDC1A\)
Sponsor
Nationwide Children's Hospital (University, hospital or other organization)
Ages
Up to 5 years
Sex
All
Healthy volunteers
Not accepted
Start
05/12/2025
Primary completion (expected)
September 2028
Last updated by sponsor
08/19/2026

Full eligibility rules, contacts and site names: NCT06503367 on ClinicalTrials.gov

Where the study has sites

Cities with at least one listed U.S. site. Some sites may not be enrolling yet.

  • California: Los Angeles, Stanford
  • Illinois: Chicago
  • Iowa: Iowa City
  • Maryland: Bethesda
  • Massachusetts: Boston
  • Minnesota: Saint Paul
  • Missouri: St Louis
  • New York: Rochester
  • Ohio: Cincinnati, Columbus
  • Pennsylvania: Pittsburgh
  • Texas: Dallas
  • Utah: Salt Lake City

Frequently asked questions

What does recruiting mean?
Recruiting means the study is currently enrolling participants. Not yet recruiting means it has been registered but has not started enrolling. Enrolling by invitation means participants are selected by the study team rather than through open enrollment.
How do I join a clinical trial?
Read the full eligibility criteria and contact information on ClinicalTrials.gov, then talk with your doctor about whether a study may be right for you. The study team decides who can enroll.

Source: ClinicalTrials.gov, National Library of Medicine · Last updated 08/19/2026